Access to the UK Biobank Resource

• Access Procedures
• Material Transfer Agreement 
• Applicant Material Transfer Agreement (MTA)
• Collaborator Material Transfer Agreement (MTA)
• Annex A (Access Procedures)
• Summary de-identification protocol
• VAT note for scientists
• Data management summary
• Linkage of data sets provided for different research projects
• Report of the UK Biobank HTA licensing number 12002
  
• Re-Contact Procedures
• Access matters: hypothesis-testing & hypothesis-generating applications
• Access matters: collaborations
• Access matters: return of derived variables
• Access matters: partial re-creation of participants’ facial images
• Access matters: guidance on return of results data
• Access matters: representativeness of the UK Biobank resource (See Further reading, below)

Genetic data

• Genotyping & Imputation Data Release – FAQs
• Decryption key & instructions on how to remove the UK Biobank encryption wrapper
• UK Biobank genetic files data formats

Background

• UK Biobank: Rationale, design and development of a large-scale prospective resource
• Addendum to the main study protocol: category 1
• Addendum to the main study protocol: category 2
• Integrated Pilot Report
• Ethics & Governance Framework

Participant recruitment

• Imaging Information Leaflet
• Imaging Information Leaflet Dec16
• Incidental Findings (IF): potentially serious abnormalities
• Participant Information Leaflet
• Further Information Leaflet
• Repeat Assessment Information Leaflet
• Participant Information Leaflet, Imaging
• Participants’ Invitation Letter
• Consent Form
• Consent Form, Imaging
• Screen notes
• Assessment Form
• ‘No further use’ withdrawal option: February 2008
• Ffurflen Gydsynio/ Welsh language Consent Form
• Taflen Wybodaeth/ Welsh language Information Leaflet
• UK Biobank Travel Expenses Policy

Baseline & follow-up questionnaires

• Touchscreen Questionnaire
• Touchscreen Questionnaire: Addendum
• Diet Questionnaire

UK Biobank Incidental Findings (IF) study materials

• Questionnaires sent to participants and their GPs
• Attitudes to and impact of the feedback of potentially serious incidental findings from UK Biobank’s imaging pilot study

Data Showcase

• Data Showcase User Guide

Further reading

• Comparison of sociodemographic & health-related characteristics of UK Biobank participants with the general population
• Why undertake repeat assessments? Regression dilution bias
• Wellcome Trust position statement in support of open and unrestricted access to published research